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Posts Tagged ‘voice disorder’

This weekend is US-based NSDA’s Walk for Talk 2021. I participated remotely from Singapore. I walked around my neighbourhood alone, as my symbolic walk for Spasmodic Dysphonia, a rare neurological voice order that had brought me down many lonely paths which I had to walk alone. I’m grateful that one of those lonely roads led me to NSDA, the National Spasmodic Dysphonia Association. Through NSDA’s website, I found a community of people struggling with SD who were positive, encouraging and good listening ears as we shared our experiences on the NSDA bulletin board. Many SD sufferers go through years of being misheard, misunderstood and misdiagnosed. NSDA has worked hard to address this, working with the medical community for treatments and increasing awareness of this strange voice condition.

As the NSDA contact person in Singapore, I’ve communicated with a few young ladies grappling with this disorder, and been reminded of how crippling it can be to not be heard. So, here’s a shout-out to NSDA’s good work and the volunteers keeping it going. And I should add that I found God on one of those paths and was gifted with a new voice in writing and many new precious friendships since!

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For World Voice Day on Sat 16 April, NSDA invited me to speak up, along with other voices around the world.

When I was going through my lowest with Spasmodic Dysphonia, a rare voice disorder, I found answers and support through the National Spasmodic Dysphonia’s online bulletin board.

So, I was very happy to be able to contribute my voice to NSDA’s One World-Many Voices theme for this year’s World Voice Day.

Hear more voices around the world at NSDA’s World Voice Day page.

World Voice Day

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